Many years ago, 18 perhaps, I started to get
sick. Nothing too serious at first but enough to start making my
college studies hard and life less energetic. I figured the tiredness
was from working too much, studying too much and partying too much. The
pain must have come from old sports injuries. These symptoms went on
for a few years until I got a bad cold. The cold
didn't go away and I just couldn't seem to get better. This began 6
months of testing to finally determine I had Lupus. I had never been so
happy to hear those words. Yes, happy. I wasn't crazy or lazy or a
hypochondriac. There was validation for why the normally vivacious and
spunky Sharon was a distant memory. There was something attacking my
immune system and I had no control over it. Armed with a diagnosis, I
began my research into this disease, reading everything I could get my
hands on. I learned quickly that Lupus would become the center of my
world that I would dance around for the rest of my life. Lupus presents
in many different ways and affects everyone differently. For me, it
has been systemic organ involvement, attacking almost every organ,
gland, joint and muscle as if they were foreign to my body.
Essentially, my body is fighting itself. It started with my thyroid,
then the gallbladder, the lungs, the heart and ultimately my kidneys in
the form of Lupus Nephritis. The LN basically began attacking my
kidneys leaving scar tissue in its wake rendering them more unable to do
their job. Over the years, I've had several different treatments
including prednisone (thanks 60 lb. weight gain), a lovely chemo
cocktail and a radical change in my diet. Over the last year or so my
kidneys were getting worse and the doctors ordered yet another
ultrasound of the bad boys. And so I went for the normal looksie and
inevitable "yep, your kidneys suck" speech. But had it not been for
already bad kidneys and the the wanted diagnosis of Lupus, they wouldn't
have found the first mass on my right kidney..........so then came the
Unwanted Diagnosis.
~ still climbing mountains ~
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